Mojo (bobbylevi) wrote,

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How am I?

I wrote the following in an email to a fellow ME/CFS suffering friend then I thought I should post it here too. I'm not looking for sympathy, just letting you know... being honest in my journal and with my friends.

I'm in one of those holes again, not depressed but my physical condition is horrid. It's a real struggle to get out of bed and stagger around the house. I'm not getting out much, and poor Lawrence is so good at doing for me, but I worry about how much stress that adds to his life.

I feel like I've been abandoned by the medical profession. They seem to find it easy to say "sorry, there's nothing I can do for you" and just leaving you in a mess, so much for the caring profession. I won't be doing CBT now, it was felt that there was nothing to gain by it, having done so much psychotherapy already. I am now waiting to see the pain clinic in June, but I can't allow myself to feel too hopeful about that either. Another disappointment will not be helpful, let's hope this helps, because I'm not sure how much more of this I can cope with.

I'm sure you know exactly what I'm saying. It amazes me that they can be so dismissive of so many ill people... trouble is not enough of us are dying from it. *sigh*
Tags: health
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